Beyond the pale : folklore, family, and the mystery of our hidden genes / Emily Urquhart.

Beyond the pale : folklore, family, and the mystery of our hidden genes / Emily Urquhart.

By
Urquhart, Emily.

Publication Date
2015

Publication Information
Toronto : Harper Avenue/HarperCollins,

Edition
1st ed.

Physical Description
282 p., [8] p. of plates : ill. (some colour)

Subject Term
Albinos and albinism.
 
Heredity.
 
Mothers and daughters -- Biography.
 
Parents of children with disabilities -- Canada -- Biography.
 
Genetic disorders in children -- Patients -- Family relationships -- Canada.
 
Genetic disorders in children -- Newfoundland and Labrador.

Bibliography Note
Includes bibliographical references and Internet addresses.

Summary
The story begins on St. Stephen's Day, 2010, in St. John's, NL, when the author gives birth to a baby girl named Sadie Jane who has a shock of snow-white hair. After three months of medical testing, Sadie is diagnosed with albinism, a rare genetic condition where pigment fails to form in the skin, hair and eyes. She is visually impaired and faces a lifetime indoors. A journalist and folklore scholar accustomed to processing the world through other people's stories, Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide.

Language
English

ISBN
9781443423564


LibraryCollectionCollectionCall NumberStatus
St. John's - A.C. Hunter (SJH)Adult NFic NLAdult Non-Fiction NL362.196 UR6Checked In
St. John's - A.C. Hunter (SJH)Adult NFic NL Ref - VaultAdult Non-Fiction NL Reference - Vault362.196 UR6NonCirculating