Beyond the pale : folklore, family, and the mystery of our hidden genes / Emily Urquhart.
Beyond the pale : folklore, family, and the mystery of our hidden genes / Emily Urquhart.
By
:
Urquhart, Emily.
Publication Date
:
2015
Publication Information
:
Toronto : Harper Avenue/HarperCollins,
Edition
:
1st ed.
Physical Description
:
282 p., [8] p. of plates : ill. (some colour)
Subject Term
:
Albinos and albinism.
Heredity.
Mothers and daughters -- Biography.
Parents of children with disabilities -- Canada -- Biography.
Genetic disorders in children -- Patients -- Family relationships -- Canada.
Genetic disorders in children -- Newfoundland and Labrador.
Bibliography Note
:
Includes bibliographical references and Internet addresses.
Summary
:
The story begins on St. Stephen's Day, 2010, in St. John's, NL, when the author gives birth to a baby girl named Sadie Jane who has a shock of snow-white hair. After three months of medical testing, Sadie is diagnosed with albinism, a rare genetic condition where pigment fails to form in the skin, hair and eyes. She is visually impaired and faces a lifetime indoors. A journalist and folklore scholar accustomed to processing the world through other people's stories, Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide.
Language
:
English
ISBN
:
9781443423564
Library | Collection | Collection | Call Number | Status |
---|
St. John's - A.C. Hunter (SJH) | Adult NFic NL | Adult Non-Fiction NL | 362.196 UR6 | Checked In |
St. John's - A.C. Hunter (SJH) | Adult NFic NL Ref - Vault | Adult Non-Fiction NL Reference - Vault | 362.196 UR6 | NonCirculating |